A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Saturday, October 31, 2015

October is Niemann Pick Disease Awareness Month - Part 4

It's the end of October.  Halloween is over.

It's also the end of the annual Niemann Pick Disease Awareness posts.  The staff at the NNPDF have made some great images this year that I am sharing.








Monday, October 26, 2015

October is Niemann Pick Disease Awareness Month - Part 3

It's October.  The leaves are turning colors and falling.

It's also time for the annual Niemann Pick Disease Awareness posts.  The staff at the NNPDF have made some great images this year that I am sharing.


Sunday, October 18, 2015

October is Niemann Pick Disease Awareness Month - Part 2

It's October.  The leaves are turning colors and falling (and we had some snow flurries here!).

It's also time for the annual Niemann Pick Disease Awareness posts.  The staff at the NNPDF have made some great images this year that I am sharing.

An update on Part 1....Jaymee Hernandez, featured in image 2, lost her battle with NPC recently.  You can read more about her here.


Thursday, October 15, 2015

How you can help raise awareness

I've posted one set of information graphics.  I have 2 more to do.  Please share the posts or the graphics.  October has so many other diseases that are also fighting for awareness this month.

So besides sharing, what else can you do?  I sell Jamberry nails in my free time.  Yes, I do have a little bit of free time.  One of the reasons I do sell Jamberry is to give back to the community that has given so much to me in support after losing Dan.  I have created this custom periwinkle awareness ribbon wrap.  I have some on hand and can order more.  You have to contact me directly to order though.  It can send them to anywhere in the US (including overseas military addresses), Canada, Australia and New Zealand.  Each sheet is $25.  One sheet will provide enough for 2 manicures and 2 pedicures.  The cost includes a donation to the NNPDF for research.

Don't want to wear them yourself? Grab a set as a gift!  Or let me donate your set to a family who is living with an NPD family member or an NPD angel.

You can email me at jillsjams(at)earthlink.net to purchase a sheet.


The deep purple wrap on my middle finger was made to support Quinn Madeline Foundation, a non profit started in memory of Quinn Madeline

Sunday, October 11, 2015

October is Niemann Pick Disease Awareness Month - Part 1

It's October.  The leaves are turning colors and falling.

It's also time for the annual Niemann Pick Disease Awareness posts.  The staff at the NNPDF have made some great images this year that I am sharing.