Today's post has a unique twist. I'm asking for financial help, but not to the NNPDF. I'm asking for help in getting a book published.
The Ingram family lost their baby Trek Atlas to Niemann Pick Type A a few months ago while traveling in Thailand. They had always dreamed of traveling the world and when they were told Trek had NPA they made that dream come true. Trek received 4 stamps in his passport in 6 months.
Shortly after Trek died, Jarrett, Trek's dad, started writing a book Following After Trek. Well, the book is done! Now the issue is getting it printed!
Here's the scoop:
The Ingram's have created a Kickstarter page to raise at least $3,000 to get 200 copies of the book printed in paperback. They are asking for help to reach their goal. If they don't make their goal, the book isn't printed, but if they reach their goal, they will print more!
To help, go to the Kickstarter page here. For every backer, there is a reward category. The rewards range from a simple email up to a book signing in your town. If you can't financially help, please share the link and a little about the book.
So here is the book summary:
a novel based on the real life story of Trek Atlas Ingram and a tale of a father who travels into the unknown in search of his son
Want to know more?
Check out Jarrett's blog entry about the Kickstarter page
Check out Chelsea's blog entry about the Kickstarter page
Check out Jarrett's blog entry about the book itself!
Posts
I am awed by the support given by the NPD families to one another. What a comfort it must be to feel not quite so alone. I do not have a personal experience with NPD and had never even heard of it until I found Kaitlyn's Korner and all of the wonderful families I've come to "know" since then. Please know that helping in the effort to find a treatment and cure for this disease is now a focus in my family. Thank you, Jill, for continuing to share your journey. It is an honor to be a part of it.
ReplyDeleteCathy, thank you too for the support and your help in raising awareness. Those directly affected are a "family" but we need help from those not in that family to spread the word. So thank you for that help! As an affected family, I can say that we really appreciate it!
Delete