This year, I am focusing on different people with Niemann-Pick Disease, one of the 7000+ rare diseases, and the one that took the life of my only son.
Below are links to the daily posts highlighting a family currently fighting Niemann-Pick Type C. Please take a minute and read through these stories. There are so many people across the globe. These are just a few. And there are so many who have been lost as well.
1 - Katha
2 - Zachary and Ashlyn
3 - Ed
4 - Cody and Kayla
5 - Keaton, Braden and Riley
6 - Isaiah
7 - Mindy
8 - Holly
9 - Mael
10 - Ty
11 - Chase
12 - Macks
13 - Matt and Tim
14 - Julia
15 - Andy
16 - Namani
17 - Taylor
18 - Johnathan
19 - Kaiden
20 - Natalia
21 - Alberto
22 - JP
23 - Kamryn
24 - John
25 - Estefania
26 - Lili
27 - Mathias, Alix, and Zita
28 - Pieter
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