A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Thursday, February 28, 2013

Rare Disease Facts




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2 comments:

  1. Jill - you have done an absolutely awesome job with these rare disease posts. You are such a champion for Dan and all of the children and families who must deal with the unthinkable every day. I am proud to call you friend and proud to be a part of this movement to make these diseases as real as the little ones they steal to those who can help find treatments and cures.

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  2. Newest follower here! I found you through the blog hop. You have a super cute blog, I look forward to reading more.

    You can find me at meandmr.com

    -Melanie @ meandmr.com

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