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And Life Goes On...An Angel and a Rainbow
A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.
Sunday, May 11, 2014
Happy Mother's Day
To all those who are moms.
Whether your child is with you are not, being a mom is a difficult job.
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Jill Flinton
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Diagnosing Niemann Pick Type C
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Niemann Pick Disease Information
National Niemann Pick Disease Foundation
Notre Dame Research into Niemann Pick Disease
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Awareness Posts
Rare Disease Awareness Feb 2014
NPD Awareness Oct 2013
Rare Disease Awareness Feb 2013
NPD Awareness Oct 2012
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National Grief Awarenss Day - Aug 30
WSJ Article on NPC Research
The Right Way to Grieve
One Word
This month's Top 5 Posts
New Year, New Word
Late last year, I saw a series of words from friends on Facebook and a link . After the difficult year I had last year, I wanted to focus...
5 for Five - Sept 16
Here is the next installment of 5 for Five with Jenn at Party of One . So what is 5 For Five? In the short form, it is 5 goals you ...
A letter
Dear Dan, You were an unexpected blessing. I never saw myself as a mom. You made me see the world in a different way. You taught me what...
Photos Age 12-18 months
Here is a Shutterfly book I created reflecting Dan's life between the age of 12 months to 18 months. Click here to view this photo ...
Christmas Trees
I grew up with an artificial ("fake") Christmas tree. The living room had 20-25 foot ceilings, so we purchased an 8-10 foot tree....
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