A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.
Tuesday, July 16, 2013
Another NPC Angel
is with tremendous sadness that we relay the news that our precious
daughter, Dana peacefully passed away on Friday evening, July 12, 2013.
We are so grateful to all those whose prayers and good wishes continue
to bless Dana and give our family strength.
The wake will be
held from 4:00PM-8:00PM on Monday, July 15th at the Leo P. Gallagher
& Son Funeral Home, 31 Arch Street, Greenwich, CT.
A mass of Christian burial will be celebrated at 10:30AM on Tuesday,
July 16, 2013 at St. Catherine of Siena Church, 4 Riverside Avenue,
It is the family's wish that, in lieu of
flowers, a memorial donation be offered to the family's medical research
foundation, Dana's Angels Research Trust, 15 East Putnam Avenue, #117,
Greenwich, CT 06830 or online at www.DanasAngels.org.
I spent 4.5 years getting a diagnosis of Niemann-Pick, Type C for my son and 4.5 months to live with it. Daniel, my little soldier, spent almost 5 years with us, Dec 7, 2006 - Nov 11, 2011. I have been blessed with a beautiful healthy daughter, born in August 2013.