A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Monday, April 17, 2017

It's never easy....

I know I vowed to write more. Living with a preschooler, working, and spending time with family have a way of making the time fly.

Until recently.  The first few weeks of April have been hard.  Really hard.
5 children, 1 week

Life is difficult, seeing this cluster reminded me of how difficult life can be and know much we need to just live it.

Five families need to move forward without someone.  It's times like these I am happy to be a part of the Niemann-Pick community. We all "get it" and many of us have been where these families now are.

So I ask all of you to please hold these families in your thoughts, as they will need support to get through some of the hardest days they will ever know. 

Friday, January 13, 2017

2017!?

Wow!

It's crazy that it is now 2017!  Where has the time gone?

The blog has been a bit quiet lately.  Late in 2016 were a lot of grief "milestones" and I had to work through them.

November 11 - 5 years since Dan died - which meant that he had been gone longer than he was here
December 7 - Dan would have been 10 years old

And then Christmas rolled around, and it's just been busy.

I hope to be back to blogging on a somewhat regular basis soon.

So for now, here are a few Christmas pictures.




These are the GeoTrax train sets that we purchased for Dan and Daddy to play with.  Shelby has been enjoying them too.  Unfortunately, Fisher Price stopped making them so finding pieces either means paying outrageous prices for one or two pieces, or getting big tubs of random pieces for a better price as people clean out their unwanted stuff.

Monday, October 31, 2016

It's October - Post 4

Did you think I would forget about Niemann-Pick Disease Awareness Month? Absolutely not!  This disease has had an impact on my life in many ways.

So here are 5 Quick Facts.  Feel free to share this blog post and increase awareness.  If you are able, financial contributions are always welcome at http://nnpdf.org






Tuesday, October 25, 2016

It's October - Post 3

Did you think I would forget about Niemann-Pick Disease Awareness Month? Absolutely not!  This disease has had an impact on my life in many ways.

So here are 5 Quick Facts.  Feel free to share this blog post and increase awareness.  If you are able, financial contributions are always welcome at http://nnpdf.org





Monday, October 17, 2016

It's October - Post 2

Did you think I would forget about Niemann-Pick Disease Awareness Month? Absolutely not!  This disease has had an impact on my life in many ways.

So here are 5 Quick Facts.  Feel free to share this blog post and increase awareness.  If you are able, financial contributions are always welcome at http://nnpdf.org





Tuesday, October 11, 2016

It's October

Ok, so we are over 10 days into the month.  Did you think I would forget about Niemann-Pick Disease Awareness Month? Absolutely not!  This disease has had an impact on my life in many ways.

So here are 5 Quick Facts.  Feel free to share this blog post and increase awareness.  If you are able, financial contributions are always welcome at http://nnpdf.org






Friday, September 16, 2016

Save or Spend?

Growing up I was a saver.  Even after I got married, we saved.  Then somewhere along the line we started spending. And then Dan was born, and we spent more for co-payments and medical supports that weren't covered by insurance.  And now Shelby.  Thankfully we have been blessed with a basement full of toys, some of which were Dan's, others were hand me downs.  We have also been blessed with family and friends from near and far who have purchased clothes and diapers.  We did not ask for these, people just love us and love Shelby.

Which leads me to a question, or a few questions.  Would you be able to ask for financial help?  Or admit you are a saver or a spender?  Would you be able to pull youself out of a financial hole without bankruptcy?

If you've read my blog for awhile, I've written about Lauren and her website I Am THAT Lady.  Lauren started her website about 6 years ago as another piece in her quest to get out of the credit card debt that she put her family in.  Lauren has also been on Dr. Oz, the Today Show, and Good Morning America, among other shows.

Well, Lauren has a new book out, The Recovering Spender which I was thrilled to be able to preview.  In it, she details how she got into the debt (and it isn't as simple as "I charged everything on my credit card.").  After she very candidly opens up about her life, and her spending addiction, she walks you through 12 steps that she took to get herself out.  And stay out.



It's one thing to be in debt and get out.  It's another to understand why you got in debt in the first place and how you can stay out.  Lauren walks you through all the steps to understand your reasons for spending.  She makes you evaluate every dollar spent.  She helps you assess what are need and what are wants, and are your needs really your wants?  She gives you actual practical steps to take.  This isn't theory or "pie in the sky" advice.

For example, Step 5 has you printing all your credit card and bank statements for a few months and categorizing each transaction so you get an average amount of spending per category.  Later steps help you identify where you can lower your spending in certain categories.



These steps are easy enough for anyone to do them  - from a fresh out of school college student, to an established career person, to a family, to grandparents.

Even if you consider yourself a saver, or are on good financial footing, reading through her book and going through the steps if well worth it.

And for a limited time, Lauren is giving away over $100 worth of freebies if you buy the book.   These freebies include budgeting and planning worksheets and her other books!  After you buy the book, head on over to the book's website to claim your goodies.