The Genzyme "Team" gathered at the Cambridge headquarters for a
group photo in support of October 2012 as NPD Awareness Month.
Today, Genzyme, a Sanofi Company, is hosting
two presentations at their facilities in Framingham, MA, their
manufacturing plant, and at their downtown Cambridge, MA office
headquarters in support of October 2013 as Niemann-Pick Disease
Awareness Month.
Making use of NNPDF provided
informational brochures
on NPD Types A & B (ASMD),
newsletters,
wristbands and
posters, the
presentations will include video testimonial from individual patients,
as well as, updates on the
progress of the ongoing
Enzyme Replacement Therapy (ERT) clinical trials
that are currently taking place with NPD Type B patients at Mt. Sinai
in New York City and in the United Kingdom. In addition, research
information and updates on the continued efforts toward additional
potential therapies for Niemann-Pick Disease Types A and B, also know
as, acid sphingomyelinase deficiency (ASMD) will be offered to the
Genzyme employees and attendees.
The entire NNPDF family community wishes to offer a
sincere note of thanks for the contiued efforts and commitment of the
Genzyme "Team" who, not only continue to PERSEVERE toward their goals
for a therapy with ASMD, but have become true partners towards this
effort with all of the NPD community world-wide. It is appreciated
more than you know.
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