October is Niemann Pick Disease Awareness Month.
I was informed this week that I was officially elected to the Board of Directors for the National Niemann Pick Disease Foundation. My 3-year term officially starts at the first of the year, although I have been involved since we went to Nashville for the Family and Medical Conference in August.
Check out the Board Picture and information about the Directors.
Every board member has some connection to Niemann Pick Disease. Most are parents of children, but some are other family members, friends, and those affected.
This position is a voluntary position and my responsibilities include helping the NNPDF fulfill it's mission of supporting and promoting research to find a cure or treatment for all types of Niemann Pick Diseases and providing support services to those affected and their families.
I look forward to lending my knowledge and experience to this wonderful team.
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Your support for all of the NPD families is tremendous already, I can only imagine what great things you'll do in this more official capacity. Well deserved!
ReplyDeleteWe are so proud of you and know that you will do an amazing job in promoting awareness. Daniel is always watching over you.
ReplyDeleteCongratulations, Jill. The Foundation is fortunate to have you - your dedication to the mission of the Foundation, the support you provide to the NPD families and the valuable information you share with the online community can only be multiplied in this new forum. Looking forward to sharing this experience with you! :)
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