A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Tuesday, May 26, 2015

Can you imagine?

I'm guessing that most of you have lost someone close to you. Whether it was a parent or a close friend.

I don't know how many of you have lost a child.

It is hard to imagine if you haven't experienced it. Now try imagining losing 3 children.

Unfortunately for one family, that is the reality. Three of their four children are NPC angels.

The Smith family created the Smith Family BReaK Thru Fund in honor (now memory) of their 3 children fighting NPC - Brandon, Riley and Keaton.  Over the weekend, they said goodbye to Keaton.

The Smith family had a close relationship with Coach Matt Painter at Purdue University.  Coach Painter won the Infiniti Coach's Challenge this year, and just  last week picked up the big check.

Please keep the family in your thoughts this week.

You can read more about the BReaK Thru Fund here: http://www.breakthrufund.org/

You can read Keaton's obituary here: http://www.soller-baker.com/memsol.cgi?user_id=1588635

Monday, May 4, 2015

How One Family Helps Another

Our Niemann Pick "family" is close, even though we are spread across the world.

Yesterday, I hosted a Jamberry fundraiser for Kelly, who lost her daughter Ashlyn a few weeks ago.  The 10 or so ladies and I had a great time giving ourselves manicures and sharing memories of Ashlyn and Dan.

You can still help.  The online portion of the fundraiser is open until at least Mother's Day.  Kelly will be saying her final goodbyes to Ashlyn on Monday May 11.  The online fundraiser is on Facebook and at my website.  At least 20% of all sales are going to help cover funeral expenses.

Oh and today, Monday May 4, is the last day to pick up this great Mother's Day Gift Set (although you don't need to be a mom or give it as a gift to your mom).  Four exclusive products (3 wraps, 1 lacquer), taffy, and pedicure tools!

But that isn't all.