A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Friday, April 11, 2014

Let's Make Aug 30 National Grief Awareness Day

Angie Cartwright from Good Grief Worldwide and Grief The Unspoken is trying to make August 30 National Grief Awareness Day.  This day is designed to increase awareness and education of grief of all types, not just child loss.  (There is another day for child loss.)

Wednesday, April 9, 2014

What an Elks Year!

It was about this time a year ago I was writing about the honor my husband received being elected Exalted Ruler (CEO) of our local Elks Lodge.

His term technically ended on March 31, however the official ceremony installing the new Exalted Ruler was on Sunday, April 6.

Here are some highlights from the past year:

Monday, April 7, 2014

5 for Five - April 7



So what is 5 For Five? In the short form, it is 5 goals you want to achieve this week. Next week, I will report on my success (or failure).

Here were the goals from last week:

Saturday, April 5, 2014

Mommy wants to sleep!

I have had 7+ months of sleeping bliss.  My beautiful girl has slept great, even in the hospital~ 10-12 hours a night.

Until recently.

Thursday, April 3, 2014

It's Tax Time!

You hear this old saying alot this time of year:
there is nothing certain except death and taxes
There are less than 2 weeks left to file your income tax returns for this year.

Wednesday, April 2, 2014

Are you a bike rider?

On Saturday, May 3, 2014 there is a Million Dollar Bike Ride to benefit world-wide rare disease research. This bike ride is on the University of Pennsylvania campus in Philadelphia.