October is Niemann Pick Disease Awareness Month.
Caring for a child with any sort of special needs is difficult. Losing a child is a whole different thing. Many families turn their challenges and loss into positive, productive businesses. Please take a minute and look at these businesses.
Willow Wicks - candles and spa products in memory of Breann Chavez (NPC)
Wyler Nation - merchandise and Warrier Baby book in memory of Wylder Laffoon (NPA)
Jarret Ingram - The Three Brothers go to the Beach! and Following After Trek in memory of Trek Ingram (NPA)
Rozetta Beckman - What Matters Most, Living with Young Adult Onset NPC, in memory of Chuck Beckman (NPC)
Stults' Sweets - cake pops and other sweet goodies in and around the Kansas City, MO area. Mother to Brisan and Parker (NPC) and Duncan.
Below are several 501(c)(3) charity organizations that have been set up by families to help fund research. If you have some extra money, please donate it to one of these organizations or the NNPDF.
Ducks for Bucks - All money raised goes directly into the hands of families caring for children with NPC, so they can personally apply it towards their greatest need at the time. Created by the Chavez family.
Lee King Bass Tournament - Hold a fishing tournament for adults that will provide funds for Niemann-Pick disease research to find a cure for this devastating disease.
Breakthru Fund - We have established the Smith Family BReaK Thru Fund in honor of three of our children, Braden, Riley and Keaton, who have been diagnosed with Niemann-Pick Type C disease (NPC).
Cycle 4 Sam - The Sam Roberts Family Fund is dedicated to the memory of Sam Roberts who passed away on April 19, 2005 at the age of 4 years 10 months.
Race for Adam - The Race for Adam Foundation, a volunteer non-profit organization dedicated to funding research projects to find a treatment and cure for Niemann-Pick Type C disease (NP-C)
Hadley Hope - a
non-profit corporation which allows us to raise awareness and funds for
research, therapies, medication, clinical trials, and research that may
potentially provide a cure for our children as well as others in the
U.S. and around the world.
All of these businesses and charities are available here, on the right side of the page.