October is Niemann-Pick Disease Awareness Month.
To continue the post from yesterday, here are some videos of those with NPA.
Wylder (May 15, 2009 - July 20, 2012)
Kaitlyn (July 1, 2009 - Mar 22, 2012)
Tehyez (June 9, 2008 - April 27, 2011)
Faith (July 3, 2005 - Feb 12, 2007)
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This month's Top 5 Posts
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Late last year, I saw a series of words from friends on Facebook and a link . After the difficult year I had last year, I wanted to focus...
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I saw this on the Global Genes webpage and wanted to share it. 2014 RARE Patient Advocacy Summit Please join us for our 3rd Annua...
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Winter has officially been here since December 21, a little over 3 weeks ago. The winter solstice is the day with the shortest amount of s...
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I've had this happen to me when some people comment on my posts, so I wanted to pass it along as a public service announcement to other ...
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It's that time of year again. I've headed off to Milwaukee for the winter board meeting for the NNPDF. For a different perspective...
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