During this month, I have put out a bunch of items on awareness. I wanted to provide a few updates.
Following After Trek
The Ingram's started a Kickstarter page to get their book published. I am excited to report the final numbers: 168 backers, $6,296! This will allow them to print 500 paperback copies of the book. You can see more about the Kickstarter project here.
Calender for Awareness
A friend of an NPA family is a Creative Memories Consultant in Canada. She is creating a calendar highlighting over 30 people with the different types of Niemann Pick Disease. Only a fixed number of calendars will be printed. Orders need to be placed by October 30. If you are interested ($32 each Canadian which includes shipping), please contact Elsa for an order form at: cardinal.hudson (at) live.ca
An NPA Video
Damon (Dec 26, 2006 - April 16, 2008)