A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Wednesday, November 21, 2012

NPD is a rare disease

Following up from yesterday's post on Rare Diseases....

Niemann-Pick Disease is considered a rare disease.

Here are some of the stories of Niemann-Pick affected children:

Warrior Baby

Eliza and Michal



Joseph (part 1, part 2)

Addi and Cassi (here, here, here, here)

There are many more on the Family Blogs + Websites link


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