A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Wednesday, October 30, 2013

How to Spread Awareness Year Round

October is Niemann Pick Disease Awareness Month

Just because we have a month, doesn't mean that you can't spread awareness all year long.  But how?


The popular PersevereWEAR has returned in more colors and styles than before! These are the shirts available at the 2013 Family Conference in Baltimore, so if you didn't get yours before supplies ran out, now is your chance! 
Visit the PersevereWEAR Store online to order yours.

Persevere For Life Wristbands

Don't leave home without your periwinkle PERSEVERE wristbands to show your support for those with Niemann-Pick Disease! These are updated for 2013 with "Persevere for Life" written along the band.  These wristbands are great for fundraisers and as gifts for friends and family alike. Adult and Youth sizes available!
NNPDF Product Order Form

Persevere Window Decals

Persevere Window Decals are produced by a good friend of the NNPDF - sales benefit the foundation.  Visit Etsy shop - Victory Decals to order.  Decal application tips (pdf)

Bravelets & Persevere Beads

Wom Men

Looking for the perfect gift that doubles for NPD awareness?  Becky Mcquire, NNPDF Board Member and Cousin of Kelly Thompson (NPC), is offering NPD Awareness jewelry through Bravelets and a Persevere Bead for Pandora and similiar bracelets!


Bravelets™ bracelets are made to help you be brave during tough times. Wear it proudly for yourself or for a loved one!
  • The women’s bracelet is made of 316L stainless steel and genuine leather.
  • The men’s bracelet features dark brown bolo leather and smooth colored leather and the adjustable bracelet is made of braided cord and stainless steel.
With every bracelet purchased, $10 will be donated to fight Niemann-Pick Disease!

Click a link below or above photo (Men/Women) to order your Bravelets!
Women's Bravelet                             Men's Bravelet

~Persevere for Life Bead~

This beautiful keepsake is periwinkle blue, the color for NPD Awareness, and says "PERSEVERE FOR LIFE" along the side. It makes a great gift and even fits Pandora™ as well as similar bracelets.
Click Here, or the above photo for the order form
Proceeds benefit the National Niemann-Pick Disease Foundation 


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