A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Thursday, October 24, 2013

Where We Were and Where We Are

October is Niemann Pick Disease Awareness Month.

Every year a radio station in Fort Atkinson, Wisconsin has Barb Vorphal, one of the founding members of the NNPDF on its morning show.

This year, Barb and Nadine Hill, the Executive Director, spent 30 minutes discussing the current state of treatment and research.
You can listen to the podcast here.


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