A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Wednesday, February 12, 2014

Rare Disease Month - Day 12

It's February.  That means it is time to focus on Rare Diseases.  You can read more about what I wrote about the past 2 years by clicking on the links to the right.

This year, I am focusing on different people with Niemann-Pick Disease, one of the 7000+ rare diseases, and the one that took the life of my only son.

Today is Macks, a cute little 2 year boy in Connecticut.  I met little Macks once and he reminded me so much of Dan.  He is a little ball of energy and is quite a little character.


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