This year, I am focusing on different people with Niemann-Pick Disease, one of the 7000+ rare diseases, and the one that took the life of my only son.
Today I am focusing in a tough little guy named Ed. Ed is in Australia and doesn't just have an NPC diagnosis. He also has a leukemia diagnosis. At age 3 it seems like he has spent more time in the hospital than out. You can read more about Ed and his adventures with ALL (acute lymphoblastic leukemia) and NPC here: http://cure4edsharp.wordpress.com/