It's February. That means it is time to focus on Rare Diseases. You can read more about what I wrote about the past 2 years by clicking on the links to the right.
This year, I am focusing on different people with Niemann-Pick Disease, one of the 7000+ rare diseases, and the one that took the life of my only son.
Today I am focusing on a Isaiah, a 10 year old boy. Isaiah has had some ups and downs lately and is struggling with seizures and eating. His mom runs a hot dog stand in the summer to help cover costs that insurance won't cover.