A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Friday, February 7, 2014

Rare Disease Month - Day 7

It's February.  That means it is time to focus on Rare Diseases.  You can read more about what I wrote about the past 2 years by clicking on the links to the right.

This year, I am focusing on different people with Niemann-Pick Disease, one of the 7000+ rare diseases, and the one that took the life of my only son.

Today is Mindy in Michigan. We had the pleasure of spending some time with Mindy and her family in Baltimore this past summer. Mindy has such a wonderful smile and her family absolutely tries to make the world a better place for her.

Here is a newspaper article from a few years ago: http://www.mlive.com/sports/jackson/index.ssf/2012/09/jackson-area_bowling_column_fa.html


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