A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.
Friday, October 10, 2014
Five Faces of Niemann Pick Disease - Week 2
It's October. That means it is time for my annual postings about Niemann Pick Disease. This year I will be highlighting different faces and families affected. Every Friday you can expect to see these posts.
Another mom has taken the time to put these images together. If you wish to see all the images, you can click here.
I spent 4.5 years getting a diagnosis of Niemann-Pick, Type C for my son and 4.5 months to live with it. Daniel, my little soldier, spent almost 5 years with us, Dec 7, 2006 - Nov 11, 2011. I have been blessed with a beautiful healthy daughter, born in August 2013.