A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Thursday, March 7, 2013

Updated: Angels Watching Over Us

Sorry that my first "real" post after my month of Rare Disease Posts is not an upbeat one.

The other day I found out that we lost another child to Niemann-Pick Disease.  "Chase" Jackson was 13 years old and had spent the last few weeks in the hospital.  Services for him are in Arkansas on Friday evening and Saturday afternoon. Here is the link to his obituary.




On a slightly brighter note, today is the 8th birthday of another little boy who lost his fight with NPC.  Little Zachary only was here for 3 months.  To remember his birthday, and to honor him, his mother has asked that everyone to wear green or notice something green in their surroundings today, March 7. 

From her Facebook event:
Please honor our special little Angel in hevean by wearing green or noticing anything green in your surroundings and take a picture for us, thank you so much in advance for all who participate...




You never "get over" losing a child, and sometimes the passing years make it tougher.  Please remember these families today, and all those families who have lost a child for any reason.

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