A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.
Tuesday, March 4, 2014
Dan's life in pictures - 24 to 30 months
I have been quite lucky in finding discounts for Shutterfly books. I absolutely love these and have made quite a few. I've been making a series of books highlighting 6 month periods of Dan's life. These will be wonderful for Shelby to look at when she gets older.
So here is the book for the 2 to 2 1/2 year old period.
I spent 4.5 years getting a diagnosis of Niemann-Pick, Type C for my son and 4.5 months to live with it. Daniel, my little soldier, spent almost 5 years with us, Dec 7, 2006 - Nov 11, 2011. I have been blessed with a beautiful healthy daughter, born in August 2013.