A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.
Tuesday, April 22, 2014
Here were some of the pictures from Easter Sunday:
Don't worry, it's a plastic egg.
I absolutely love this Ciao! baby portable highchair. It folds up like a portable lawn chair and has a carry bag. It is very sturdy and wipes clean super easy. There is a safety strap in the seat area so she won't fall over or climb out.
Disclosure: Some of the links in this post are my referral links. By clicking on these links I may be compensated.
I spent 4.5 years getting a diagnosis of Niemann-Pick, Type C for my son and 4.5 months to live with it. Daniel, my little soldier, spent almost 5 years with us, Dec 7, 2006 - Nov 11, 2011. I have been blessed with a beautiful healthy daughter, born in August 2013.