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And Life Goes On...An Angel and a Rainbow
A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.
Sunday, May 11, 2014
Happy Mother's Day
To all those who are moms.
Whether your child is with you are not, being a mom is a difficult job.
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Jill Flinton
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Diagnosing Niemann Pick Type C
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This month's Top 5 Posts
A letter
Dear Dan, You were an unexpected blessing. I never saw myself as a mom. You made me see the world in a different way. You taught me what...
Jewish Proverb
The following proverb was in an email I received this morning: "I ask not for a lighter burden, but for broader shoulders." ...
So how did I do?
Last weekend was an emotional weekend for me. One year ago on Nov 10 was the last time I kissed my son good night. It was the last time...
Rare Disease 1 - Epidermolysis Bullosa
From Wikipedia: Epidermolysis bullosa ( EB ) is an inherited connective tissue disease causing blisters in the skin and mucosal membra...
Mid-Winter Ick
Winter has officially been here since December 21, a little over 3 weeks ago. The winter solstice is the day with the shortest amount of s...
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