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And Life Goes On...An Angel and a Rainbow
A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.
Sunday, May 11, 2014
Happy Mother's Day
To all those who are moms.
Whether your child is with you are not, being a mom is a difficult job.
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Jill Flinton
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Diagnosing Niemann Pick Type C
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Niemann Pick Disease Information
National Niemann Pick Disease Foundation
Notre Dame Research into Niemann Pick Disease
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Rare Disease Awareness Feb 2014
NPD Awareness Oct 2013
Rare Disease Awareness Feb 2013
NPD Awareness Oct 2012
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National Grief Awarenss Day - Aug 30
WSJ Article on NPC Research
The Right Way to Grieve
One Word
This month's Top 5 Posts
Book Review: Sunshine After the Storm
I was given the opportunity to review Sunshine After the Storm: A Survival Guide for the Grieving Mother . I was provided a Kindle copy of...
In Memory
One year ago...
...I lost my son, my baby, my boy. My husband wrote these beautiful words on his Facebook page last month: It has been 11 months tod...
18 months and 7 years
About 7 years ago I found out I was pregnant. We were in the middle of renovating the house we had just purchased and had a bunch of things...
Mid-Winter Ick
Winter has officially been here since December 21, a little over 3 weeks ago. The winter solstice is the day with the shortest amount of s...
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