A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.
Thursday, August 9, 2012
I've been working on documenting Dan's life in various ways. This is my most recent creation. I tried to capture all the fun things we did with him in his short 5 years. It in no way, captures all of our memories and our feelings, but hopefully will serve as a starting point to remember much, much more. And of course, we did things when we didn't have a camera...such as Chuck E. Cheese and many Firework celebrations.
I spent 4.5 years getting a diagnosis of Niemann-Pick, Type C for my son and 4.5 months to live with it. Daniel, my little soldier, spent almost 5 years with us, Dec 7, 2006 - Nov 11, 2011. I have been blessed with a beautiful healthy daughter, born in August 2013.