For more information, see the Wikipedia listing and the United Leukodystrophy Foundation.
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This month's Top 5 Posts
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...I lost my son, my baby, my boy. My husband wrote these beautiful words on his Facebook page last month: It has been 11 months tod...
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It's Monday! That means a new installment of 5 for Five with Jenn and Jessica ! See the blogs participating by clicking on the button ...
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We just returned from the most recent NNPDF Family Support and Medical Conference. This year we were in Danvers, MA. Every year I... -
Late last year, I saw a series of words from friends on Facebook and a link . After the difficult year I had last year, I wanted to focus...
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October was Niemann-Pick Disease Awareness Month. Here is a recap of my posts: Angels Another NPC Angel An NPC Angel Niemann...
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