October is Niemann Pick Disease Awareness Month
So much of this blog is devoted to Type C, the variant that Dan had. But there are other types. Below is a booklet published in the United Kingdom about Type B, which is the non-neurological type of Niemann Pick Disease.
I invite my Type B friends to provide their thoughts in the comments (if they want).
A Practical Guide to Acid Sphingomyelinase Deficiency - Niemann Pick-Disease Type B
The Niemann-Pick Disease Group (UK) in tandem with an educational grant from Genzyme, A Sanofi Company, developed this guide with the help of parents and caregivers of children, young people and adults affected by Acid Sphingomyelinase Deficiency (ASMD) NPD Type B.
A Practical Guide to Living with ASMD Niemann-Pick disease type B (NP-B) aims to provide practical information, reassurance and support to those living with ASMD NP-B. The NNPDF is thankful to the NPD Group UK for making this booklet available to our US and Canadian families.