A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.
Saturday, January 4, 2014
And it's cold....
So this is what it was last night around my house. The screen shot was about 1am, the digital display was taken by a friend in her car about 2am a few miles away. Yes, it was cold. This is not normal weather for my area.
I spent 4.5 years getting a diagnosis of Niemann-Pick, Type C for my son and 4.5 months to live with it. Daniel, my little soldier, spent almost 5 years with us, Dec 7, 2006 - Nov 11, 2011. I have been blessed with a beautiful healthy daughter, born in August 2013.