A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Wednesday, February 26, 2014

Rare Disease Month - Day 26



It's February.  That means it is time to focus on Rare Diseases.  You can read more about what I wrote about the past 2 years by clicking on the links to the right.

This year, I am focusing on different people with Niemann-Pick Disease, one of the 7000+ rare diseases, and the one that took the life of my only son.

Today is for teenager Lili in Germany.  I had the wonderful experience of meeting her mother Sabine in Baltimore in August 2013.

http://www.lebenshilfe.de/wData/img/themen-fachliches/Lili_Portraet_klein.jpg

0 comments:

Post a Comment

I love hearing from my readers. Please leave a comment to let me know you stopped by. :-)