It's February. That means it is time to focus on Rare Diseases. You can read more about what I wrote about the past 2 years by clicking on the links to the right.
This year, I am focusing on different people with Niemann-Pick Disease, one of the 7000+ rare diseases, and the one that took the life of my only son.
Today is for teenager Lili in Germany. I had the wonderful experience of meeting her mother Sabine in Baltimore in August 2013.