A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Saturday, May 3, 2014


Sorry I've been quiet this week.  I've had a bunch of little things going on that add up to a lot of time.  I have a bunch of posts in draft, it's just a matter of putting the finishing touches on them.

I hope to get a few posted this week. Thanks for sticking around during the quiet time.


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