I stumbled across this great blog post this morning. You can read it here. It's a reminder that angel parents are not broken and we will never be the same.
It's fitting for that reminder this week. A birthday party for a 3 year old (yes, she is 3!) and then off to the NNPDF conference. My emotions will be all over. I think I need my Niemann Pick family this year, even though there are more angel parents and more affected children and I can see the disease progression. It's comforting to know that others have walked in my shoes and understand and don't judge.