Monday, December 23, 2013
5 for Five - Dec 23
So what is 5 For Five? In the short form, it is 5 goals you want to achieve this week. Next week, I will report on my success (or failure). Jenn does a better job of explaining it here.
Here were last week's goals:
1. Decorate for Christmas. Done! Tree up, house decorated, even the villages this year.
2. Read 2 newspapers a day. Total fail! :-(
3. Start implementing some of Crystal's ideas from her book Say Goodbye to Survival Mode. I'm still working on her 7-day challenge, if that counts???
4. Do some work on NNPDF items. Done!
5. Take some time for myself. I don't think I did.
Well, this didn't end up being the week I wanted it to be. But there is one more week in this month to do good. So here are my goals for the last week of the year!
1. Enjoy Shelby's first Christmas!
2. Start to map out a plan for next year.
3. Read, read, read!!
4. Spend time with family.
5. Have a Merry Christmas!
Next week, I will do a recap of the year - comparing the goals I set last January to what I really did get done (or not done!!)
Thursday, December 19, 2013
Nursery Decorating
I don't know if it is the "second kid syndrome" or being so busy this summer or being cautious since we didn't know Shelby's diagnosis. We bought her crib in the spring, and we had moved a dresser and a futon into her room quite a few years ago. But we hadn't really decorated her room.
Dan's room had the curtains up and was all set up including Winnie the Pooh stickers and artwork on the walls - all before I was 7 months pregnant.
So I finally got around to doing some decorating. We had painted the room many years ago this brilliant blue color. We talked about painting over it with a purple, and we even bought a few sample jugs of different colored paints, but never got around to it. So this is what we have now:
Thank you to my good friend (and fellow NPC mom) Shannon for the butterflies!
Dan's room had the curtains up and was all set up including Winnie the Pooh stickers and artwork on the walls - all before I was 7 months pregnant.
So I finally got around to doing some decorating. We had painted the room many years ago this brilliant blue color. We talked about painting over it with a purple, and we even bought a few sample jugs of different colored paints, but never got around to it. So this is what we have now:
Thank you to my good friend (and fellow NPC mom) Shannon for the butterflies!
Wednesday, December 18, 2013
Gain an Extra 15 Minutes in Your Day
Say Goodbye to Survival Mode Challenge – Day 4: Gain an Extra 15 Minutes
If you want to be more productive, you need to become the master of your minutes. Do you ever find yourself with short five-minute windows of time here and there? Our schedules are so jam packed, but there always seem to be those little niches of time that pop up throughout the day.It’s easy to mindlessly pick up your phone, browse the web, or check your Facebook news feed for the tenth time. Sometimes, we’re not even aware that we’re spacing out. But consider what you can actually accomplish in a few minutes of time. For example, you can do the following:

You can sign up for the Challenge at the link in the picture.
***********************
Ok, so I'm working on this Challenge, just like I told you I would. But I am modifying it a bit. I'm going to work on an item a week, instead of an item a day.
So how did I do budgeting my time?? My morning routine is pretty good with getting up and getting out the door with everything I need for work. I probably could stop hitting the snooze button though. So I focused on my evening routine - what I wanted to get done when I first got home from work. It took an entire week to get a routine in place, now I just have to practice, practice, practice:
Here is Day 2 (or Week 2) with my results from Day 1.
Here is Day 3 (or Week 3) with my results from Day 2.
Oh yeah - I'm still making my lists from Day 1. I don't feel I'm accomplishing as much now, the same items are still on the lists. But then again, showering is important.
I still have my list from Day 2, and look at it but I haven't added anything to it.
Come back next week to see how I did with Day 4!
If you want to be more productive, you need to become the master of your minutes. Do you ever find yourself with short five-minute windows of time here and there? Our schedules are so jam packed, but there always seem to be those little niches of time that pop up throughout the day.It’s easy to mindlessly pick up your phone, browse the web, or check your Facebook news feed for the tenth time. Sometimes, we’re not even aware that we’re spacing out. But consider what you can actually accomplish in a few minutes of time. For example, you can do the following:
- Write a thank-you note or encouraging e-mail.
- Clean the kitchen sink or bathroom toilet.
- Switch a load of laundry from the washer to the dryer.
- Pull out dinner from the freezer.
- Make a healthy snack to munch on instead of grazing on high-calorie, low-nutrition foods.
- Take your vitamins, and drink a glass of water.
- Do twenty-five sit-ups.
- Tidy up a room.
- Read a short story to your child.
- Wipe down the kitchen counters.
- Text your husband to tell him you love him.
- Read two pages of the book you’re currently reading.
- Pray for someone you know who is struggling or for a need in your own life.
Let’s take this idea a step further. Is it possible to gain an extra 15
minutes per day? If you’re not so sure, I encourage you to think about
one of the biggest time wasters around: social media.
While it might seem like 15 minutes isn’t much, investing this time
every day on a consistent basis can really start to add up to
significant traction made and ground covered.
If your goal is to:
- Lose weight – You can exercise or make a healthy meal.
- Read more – You can read a few chapters in a book (depending on how long they are).
- Save money –You can research coupon deals for the week, work on your budget, or look for ways to supplement your income.
- Get certified in a particular field of interest – You can study for an exam.
- Learn a new language – You can listen to an instructional CD.
- Write a book – You can write a few paragraphs a day.
Remove all distractions and don’t let anything deter you from your
purpose during those 15 minutes. Turn off your phone, TV, and laptop (if
you’re not using it). Make sure no one is around. Settle into a quiet
space, and get done what you need to get done.
Not only does such a short window of time discourage you from
procrastinating, but you also won’t struggle with running out of steam
because your time will be up before you know it!
Today’s Challenge
Start using the 15-minute principle by making a prioritized list of the things you want to accomplish in the order you want to get them done. This is a very abridged version of goal setting, but for the purpose of this challenge, it’s a fantastic place to start. You need concrete, realistic goals if you want to continually move in the right direction. Without goals, all your good intentions amount to nothing. Set a timer for 15 minutes right now and begin chipping away at this list until the timer goes off.
Think about how much time you will realistically need. Whatever those five things are, commit to getting up and doing them first thing tomorrow and then consistently for three weeks. Put your plan somewhere you can see it so you can keep track of your time and what you need to do. You may need to adjust what time you wake up to accommodate your morning routine, so think about that tonight and if you need to, get to bed earlier.
Start using the 15-minute principle by making a prioritized list of the things you want to accomplish in the order you want to get them done. This is a very abridged version of goal setting, but for the purpose of this challenge, it’s a fantastic place to start. You need concrete, realistic goals if you want to continually move in the right direction. Without goals, all your good intentions amount to nothing. Set a timer for 15 minutes right now and begin chipping away at this list until the timer goes off.
Think about how much time you will realistically need. Whatever those five things are, commit to getting up and doing them first thing tomorrow and then consistently for three weeks. Put your plan somewhere you can see it so you can keep track of your time and what you need to do. You may need to adjust what time you wake up to accommodate your morning routine, so think about that tonight and if you need to, get to bed earlier.

You can sign up for the Challenge at the link in the picture.
***********************
Ok, so I'm working on this Challenge, just like I told you I would. But I am modifying it a bit. I'm going to work on an item a week, instead of an item a day.
So how did I do budgeting my time?? My morning routine is pretty good with getting up and getting out the door with everything I need for work. I probably could stop hitting the snooze button though. So I focused on my evening routine - what I wanted to get done when I first got home from work. It took an entire week to get a routine in place, now I just have to practice, practice, practice:
- empty my lunch bag
- put the pumped milk and the ice pack in the freezer
- pack my work bag
- pack my lunch and leave it in the fridge
Here is Day 2 (or Week 2) with my results from Day 1.
Here is Day 3 (or Week 3) with my results from Day 2.
Oh yeah - I'm still making my lists from Day 1. I don't feel I'm accomplishing as much now, the same items are still on the lists. But then again, showering is important.
I still have my list from Day 2, and look at it but I haven't added anything to it.
Come back next week to see how I did with Day 4!
Monday, December 16, 2013
5 for Five - Dec 16
So what is 5 For Five? In the short form, it is 5 goals you want to achieve this week. Next week, I will report on my success (or failure). Jenn does a better job of explaining it here.
Here were last week's goals:
1. Finish reading the preview copy of Crystal's book. Done! Now I need to re-read it and put some of her ideas into practice.
2. Finish cleaning out my expired coupons. Yes! All the November ones are gone!
3. Read 2 newspapers a day. It felt so good to make such progress, I want to hold myself accountable! I did 6 of 7 days! And I am done with May!
4. Finish decorating Shelby's room. I really want to get this done before she sleeps in there full-time. I put up the vinyl stickers but still have more to do. The stickers were what I really wanted to do, so I'm calling this a success.
5. Write at least 3 more blog posts this week. I enjoy writing, but need to make time to do it. Done!
I'm saying this is a 5 of 5 week - I did it!!!
So what are the plans for next week? Here are mine:
1. Decorate for Christmas.
2. Read 2 newspapers a day.
3. Start implementing some of Crystal's ideas from her book Say Goodbye to Survival Mode.
4. Do some work on NNPDF items.
5. Take some time for myself.
Anyone want to join me in making some goals? How did everyone do with their goals from last week? So what are you planning for this week? Feel free to post them below if you want.
Saturday, December 14, 2013
How A Clinical Trial Really Looks
Last year in Nashville, the first family we met was the Papier's: mom Darrile, dad Mark and son Dillon.
Dillon reminded us of Dan, even though he was a few years older. We spent some time talking with them and I spent some additional time with Darrile at the NNPDF meetings.
Shortly after the conference, I found this article about Dillon:
http://www.sheknows.com/parenting/articles/962672/mom-story-my-son-has-niemann-pick-disease
Last month I posted the Wall Street Journal Article about how long it has taken to bring a potential treatment through the research to clinical trial. Part of that article had a video of Dillon:
Dillon has recently been re-enrolled in the cyclodextrin clinical trial. Amy Markus, the Wall Street Journal reporter, has followed Dillon as he continues on his journey:
http://blogs.wsj.com/photojournal/2013/12/10/trials-a-race-to-save-a-boy/
Dillon reminded us of Dan, even though he was a few years older. We spent some time talking with them and I spent some additional time with Darrile at the NNPDF meetings.
Shortly after the conference, I found this article about Dillon:
http://www.sheknows.com/parenting/articles/962672/mom-story-my-son-has-niemann-pick-disease
Last month I posted the Wall Street Journal Article about how long it has taken to bring a potential treatment through the research to clinical trial. Part of that article had a video of Dillon:
Dillon has recently been re-enrolled in the cyclodextrin clinical trial. Amy Markus, the Wall Street Journal reporter, has followed Dillon as he continues on his journey:
http://blogs.wsj.com/photojournal/2013/12/10/trials-a-race-to-save-a-boy/
Friday, December 13, 2013
A teenage angel
Tyler White-Richardson
09/11/1996 ~ 12/12/2013
09/11/1996 ~ 12/12/2013
Tylor White-Richardson ~ NPC
Hello My Dearest NNPDF Families and Friends,
We received heartbreaking news today from Jennifer White-Richardson, that her beloved son, Tylor (Ty) White-Richardson (NPC, age 17) passed away today.
So many in the NPD community will remember Ty and his Mom taking to the dance floor at the family conferences for their annual "Mother & Son" dance. In Baltimore, Maryland this summer ~ Ty also stole the show while break dancing with a long neon pink wig on! Whenever anyone thinks of Ty ~ they will remember a tall, handsome young man who was always ready with a thumbs-up and a quick smile that would simply light up the room. Not to mention that he was absolutely the BIGGEST Brett Favre Packer Fan ever known!
Jenn and family ~ we are all crushed to learn that your precious son, Ty, has lost his courageous battle with NPD. He is a true inspiration to all that had the pleasure to meet and get to know him. With tears and heavy hearts ~ Nadine and all of the NNPDF families
Ty and his hero, Brett Favre in 2008
Labels:
angel,
Niemann Pick Disease,
NPC
Wednesday, December 11, 2013
Budget Your Time
Say Goodbye to Survival Mode Challenge – Day 3: Budget Your Time
In order to stay focused on the best things, you need to be sure you are purposefully managing your time. This means you need to map out a regular routine. I know, I know. This doesn’t sound as glamorous as going with the flow and being spontaneous. It might even sound boring. But until you have a solid idea of how you spend your time—and learn how to do it purposefully—you’ll spend your life simply surviving. Routines allow you to get your life in order so you can start living your days with purpose.

You can sign up for the Challenge at the link in the picture.
***********************
Ok, so I'm working on this Challenge, just like I told you I would. But I am modifying it a bit. I'm going to work on an item a week, instead of an item a day.
Here is Day 1 (or Week 1).
Here is Day 2 (or Week 2) with my results from Day 1.
So I planned on taking 10 minutes a day and list those things I am good at, as well as ask others. I didn't take 10 minutes each day, but I did think about it several times a day. I did link the post to my personal Facebook page and a few friends responded.
Some of the items I came up with: being able to explain Word and Excel functions over the phone, learning by reading, couponing. Here are some that others came up with: inspiring others, being an advocate.
Oh yeah - I'm still making my lists from Day 1.
Come back next week to see how I did with Day 3!
In order to stay focused on the best things, you need to be sure you are purposefully managing your time. This means you need to map out a regular routine. I know, I know. This doesn’t sound as glamorous as going with the flow and being spontaneous. It might even sound boring. But until you have a solid idea of how you spend your time—and learn how to do it purposefully—you’ll spend your life simply surviving. Routines allow you to get your life in order so you can start living your days with purpose.
If schedules stress you out, don’t worry. What we’re doing isn’t
complicated or overly structured. It won’t even be minute-by-minute,
unless you really, really want to do that. In fact, I encourage you not
to. Strict schedules usually set you up for failure. I learned this the
hard way. I’d make these elaborate schedules and I’d get so flustered
because I’d crammed them so full that the whole day was thrown off whack
with just one or two little interruptions. So keep it simple. Instead,
stick with a flexible routine.
Today’s Challenge
I want you to create your ideal morning routine. If you don’t have any structure in your life right now, this one action will make a big difference in how you approach each day. Take some time right now to write down the five things you need and want to do each morning. Things like exercise, read and pray, clean up the kitchen, wake and feed the kids breakfast, and prepare lunches or even dinner.
Think about how much time you will realistically need. Whatever those five things are, commit to getting up and doing them first thing tomorrow and then consistently for three weeks. Put your plan somewhere you can see it so you can keep track of your time and what you need to do. You may need to adjust what time you wake up to accommodate your morning routine, so think about that tonight and if you need to, get to bed earlier.
Take back your morning and see firsthand the difference it will make in your day!
Today’s Challenge
I want you to create your ideal morning routine. If you don’t have any structure in your life right now, this one action will make a big difference in how you approach each day. Take some time right now to write down the five things you need and want to do each morning. Things like exercise, read and pray, clean up the kitchen, wake and feed the kids breakfast, and prepare lunches or even dinner.
Think about how much time you will realistically need. Whatever those five things are, commit to getting up and doing them first thing tomorrow and then consistently for three weeks. Put your plan somewhere you can see it so you can keep track of your time and what you need to do. You may need to adjust what time you wake up to accommodate your morning routine, so think about that tonight and if you need to, get to bed earlier.
Take back your morning and see firsthand the difference it will make in your day!

You can sign up for the Challenge at the link in the picture.
***********************
Ok, so I'm working on this Challenge, just like I told you I would. But I am modifying it a bit. I'm going to work on an item a week, instead of an item a day.
Here is Day 1 (or Week 1).
Here is Day 2 (or Week 2) with my results from Day 1.
So I planned on taking 10 minutes a day and list those things I am good at, as well as ask others. I didn't take 10 minutes each day, but I did think about it several times a day. I did link the post to my personal Facebook page and a few friends responded.
Some of the items I came up with: being able to explain Word and Excel functions over the phone, learning by reading, couponing. Here are some that others came up with: inspiring others, being an advocate.
Oh yeah - I'm still making my lists from Day 1.
Come back next week to see how I did with Day 3!
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