A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Monday, October 1, 2012

Photos of those with Niemann-Pick Diseases

October is National Niemann-Pick Disease Awareness Month.

Please take a minute to look at these albums of photos of those who have been affected by (or lost to) Niemann Pick Diseases (Facebook login required for the albums)

Album created for Rare Disease Day 2012

Album created for October 2011 Awareness Month


This is the video from the 2012 NNPDF Conference, memorializing those who were lost in the past year (no login required)

NNPDF 2012 Family Conference
Please help by spreading awareness!
Posted by Jill Flinton at 10:27 AM
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2 comments:

  1. GrandmaOctober 1, 2012 at 1:17 PM

    What beautiful children who are now in heaven, smiling, playing and watching over their families.

    ReplyDelete
  2. Cathy JohnsonOctober 2, 2012 at 9:54 AM

    What beautiful souls - each with his or her own special message. Thank you for posting - it's such a great reminder to treasure every minute with those we love.

    ReplyDelete

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