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This month's Top 5 Posts
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Late last year, I saw a series of words from friends on Facebook and a link . After the difficult year I had last year, I wanted to focus...
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I saw this on the Global Genes webpage and wanted to share it. 2014 RARE Patient Advocacy Summit Please join us for our 3rd Annua...
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Winter has officially been here since December 21, a little over 3 weeks ago. The winter solstice is the day with the shortest amount of s...
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I've had this happen to me when some people comment on my posts, so I wanted to pass it along as a public service announcement to other ...
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It's that time of year again. I've headed off to Milwaukee for the winter board meeting for the NNPDF. For a different perspective...
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Northeast Bloggers
Jill - you have done an absolutely awesome job with these rare disease posts. You are such a champion for Dan and all of the children and families who must deal with the unthinkable every day. I am proud to call you friend and proud to be a part of this movement to make these diseases as real as the little ones they steal to those who can help find treatments and cures.
ReplyDeleteNewest follower here! I found you through the blog hop. You have a super cute blog, I look forward to reading more.
ReplyDeleteYou can find me at meandmr.com
-Melanie @ meandmr.com