A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.
Tuesday, December 31, 2013
This was the first year we really decorated since Dan died. It was difficult to do, but every year is a bit different. We have to start living with kids again and celebrating holidays as holidays, not just another day of the year. We can't jip Shelby because we miss Dan.
So here is how we decorated:
Welcome Christmas morning!!! The train set we bought for Dan to play with - the Geo Trax Christmas Set. Shelby doesn't quite have the knack of the controller, but I'm sure she will next year!
I spent 4.5 years getting a diagnosis of Niemann-Pick, Type C for my son and 4.5 months to live with it. Daniel, my little soldier, spent almost 5 years with us, Dec 7, 2006 - Nov 11, 2011. I have been blessed with a beautiful healthy daughter, born in August 2013.