A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life.

Thursday, January 9, 2014

Thumping Thursday Bloghop - Jan 9 - Guest Co-Host


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Welcome to the 
Thumping Thursdays Blog Hop!
Click on the badge to grab the code and help grow the HOP!!

How is 2014 treating you so far?  Are you succeeding at your New Year's Resolutions?
Thank you for joining us this week.  It's great to have you link-up.  If you are new, WELCOME!
For previous featured posts, please see the
Thumping Thursdays Blog Hop Pinterest Board.

 

Megan



Jill
Follow on Bloglovin

April @100lb. Countdown
Suzanne @Baltimore Mom

Rea @Home For 4 Sweet Home
















NOW.....on to the hop. 
Karina - Mom In The USA
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Please leave a comment if you are a new follower!

Simple Rules:
1. Follow your hostess and co-hostesses
.
  2. Add the badge somewhere on your blog.
Click here to grab the code.
4. Visit at least the two blogs before yours in the link set-up.  
Let's spread the word about this blog hop.
5. Share the Hop so others can join us and we can grow!


 
Have Fun!
By linking up to this party, you are giving Mom in the USA permission to share your posts and pictures via social media.  All features will be linked back to the original site. I am glad you have shared your links here and will try to promote as many of your lovely posts as possible each week.

Wednesday, January 8, 2014

Hold Yourself Accountable

Say Goodbye to Survival Mode Challenge – Day 6: Hold Yourself Accountable

The key to living a life on purpose is learning how to move forward even when distractions, life-changing events and setbacks occur on your journey.
 
Feeling stuck is hard. It’s amazing how much weight it can carry and how powerful it can seem when you don’t feel like you’re getting anywhere and every time you turn around, another curveball is thrown your way. Giving up on the desires and goals you have created to start living intentionally can be tempting, especially if so much time has passed and you haven’t seen the results you want.

It seems you’ll never be able to get unstuck. When you struggle for a long time and are barely getting by, it can be easy to call off the whole thing and forget about your dreams, goals, and desires, or making any improvements in your life.

While most of us probably will never compete in the Olympics, if you want to live on purpose, you’ll have to have the mind-set of an Olympian. You’ll have to make sacrifices. Get up earlier. Give up late-night dinners. Drive an older model car. Say no to that piece of chocolate cake. Study instead of seeing that movie. Invest time in your family instead of filling your social calendar with parties. That’s okay. In the long run, those sacrifices and your counter-cultural living choices will pay off with big dividends.
 
Keeping those long-term benefits in mind will help you get through the temporary discomforts. 

Maybe you just want to enjoy your life instead of running ragged, feeling lost without any direction, and struggling to find meaning in the middle of busy and crazy schedules.
 
You have to be willing to cut back, give up things, spend your time differently, and say no more often. You may even risk hearing negative comments from others. How willing you are to make changes is directly dependent upon how motivated you are to get where you want to go. What simple, short-term sacrifices can you make to help you get to where you want to be or achieve what you hope to accomplish? 

You might be thinking, “I wish I had an accountability partner, but I don’t know where to find one.” Well, it might not be as hard as you think. Anyone can be your accountability partner—your husband, parent, sibling, friend, or neighbor. Start with your local friends and family and find someone who is encouraging, committed, and not afraid to tell you the truth if you’re getting behind or off-track. He or she needs to be willing and able to take you to task if you’re not following through with the goals you’ve set. At the same time, you want someone who will give you grace and understanding when you’ve set the bar too high or when unexpected situations outside your control come up. And don’t forget to choose someone who will gladly celebrate your milestones along the way! 

 Today’s Challenge

Find an accountability partner. You can’t live a purposeful life on your own. Find a friend who is willing to keep you on task. Contact them by email or phone today and present your proposal. If they accept, schedule a start date for regular check-ins, whether online, in person, or over the phone. Share ideas on how to practically engage in an accountability relationship.
 
No more excuses! It’s time to hold yourself accountable!

Say Goodbye to Survival Mode

You can sign up for the Challenge at the link in the picture.

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Ok, so I'm working on this Challenge, just like I told you I would.  But I am modifying it a bit. I'm going to work on an item a week, instead of an item a day.


This is a big challenge for me.  Ever since Dan died, the clutter has taken over to the point that I just want to through out everything!!  But my dear hubby has been patient with me and slowly piling the clutter so I can get through it.  But every time I try to get started on a pile of clutter, we have to go somewhere or do something else, so the clutter sits.  Let's see what I can get done this week.


Here is Day 1 (or Week 1).

Here is Day 2 (or Week 2) with my results from Day 1.

Here is Day 3 (or Week 3) with my results from Day 2.

Here is Day 4 (or Week 4) with my results from Day 3.

Here is Day 5 (or Week 5) with my results from Day 4.  I continued this day/week for an extra week due to the holidays.


Results: 
I'm still making my lists from Day 1. I don't feel I'm accomplishing as much now, the same items are still on the lists.  But then again, showering is important.  Slowly the to-do list is getting longer.  I need to really limit it to 4-5 items.

I still have my list from Day 2, and look at it but I haven't added anything to it.

I'm generally sticking to my Sunday-Thursday evening routine that I created in Day 3.  There have been a couple of days where it hasn't gone great, but it takes a few weeks to make a new habit.  I'm doing fairly well with this now.

My prioritized list of things from Day 4? I always have that, and it changes day by day.   I'm lucky I remember my name the last few weeks, and finding even 2 minutes to tackle something on the list...well, that's been tricky too.  So, I will make this a renewed effort over the rest of the 7 day challenge to work on this one a bit more.  I've tried adding this to my to-do list from Day 1 to make sure I get done the items I need to get done.

Ok, Day 5.  Well I didn't do as well as I wanted to, even extending it an extra week.  I have tackled a few *small* areas, but not as much as I wanted to do.  I think I am putting too much on my plate.  So I'm going to try to do this 1-2 times a week, not once a day.

Come back next week to see how I did on Day 6.  Crystal's book will be released on January 21.  You can pre-order it here and get some awesome freebies!!!  You can also check in with Crystal at www.moneysavingmom.com to see how she is doing with her own 7-Day Challenge!!

Tuesday, January 7, 2014

Are you a stressed out Caregiver???

Just read an interesting statistic: Most Americans will be caregivers at some point in their lives, outside of typical parenting. Whether it's caring for a parent, a disabled child or sick spouse, nearly 44 million Americans are considered informal caregivers in any given year, according to the U.S. Department of Health and Human Services' Office on Women's Health. Most caregivers are middle-aged, and most are women. (The Daily Gazette, June 30, 2013, page B1)

The same article has a link to the Family Caregiver Stress Relief website where there is a link to a caregiver stress test and links to resources to find some help.  Although most of the resources are targeted toward helping seniors (parents), some of the information is also useful for being a caregiver to others.

Last month the NNPDF posted 12 ways to "Care for the Caregiver", especially targeted toward those caring for sick children:

Day 1 - Take Care of Yourself Physically
Day 2 - Don't Overload Your Daily "To Do" List - Be Realistic
Day 3 - Give Yourself Permission to Have a Good Cry
Day 4 - Getting Adequate Rest
Day 5 - Seeking Professional Help if Needed
Day 6 - Take a Break Every Day
Day 7 - Explore Community Resources and Connect Yourself to Them
Day 8 - Learn relaxation techniques to help alleviate stress!
Day 9 - Give yourself a special treat at least once a month!
Day 10 - Regularly attend (or connect on-line) with support groups and/or education workshops.
Day 11 - Know Your Limitations
Day 12 - Give Yourself Credit for All the Good You Do 


Please take a minute and think about yourself.  If you aren't taking care of yourself, you can't take care of them.

Monday, January 6, 2014

5 for Five - Jan 6

Party of One


So what is 5 For Five? In the short form, it is 5 goals you want to achieve this week. Next week, I will report on my success (or failure). Jenn does a better job of explaining it here.

Here were the goals from before Christmas:
1. Enjoy Shelby's first Christmas!
2. Start to map out a plan for next  year.
3. Read, read, read!! (It took almost 2 weeks, but I am done with the June newspapers!)
4. Spend time with family.
5. Have a Merry Christmas!

As you can see, I made them fairly doable and easy - why not????  I have to say, that made it easy to have a 5 for 5 week!

So what are my goals for the first full week in January???
1. Tackle some of Crystal's 7-Day Challenge!
2. Re-read the preview version of her book and start implementing the ideas.
3. Read some newspapers.
4. Enjoy watching Shelby explore her world.
5. Do some NNPDF work.

Ok, who is with me?  Let's start off the year with some goals and keep each other on track to a better year!

Sunday, January 5, 2014

Gratitute Jar

I saw this picture on Facebook a few weeks ago and shared it to my wall.  Several people wanted me to remind them when the year began, so here is your reminder:


Saturday, January 4, 2014

And it's cold....

So this is what it was last night around my house.  The screen shot was about 1am, the digital display was taken by a friend in her car about 2am a few miles away.  Yes, it was cold. This is not normal weather for my area.

Friday, January 3, 2014

Tackle the Home Front - Part 2

On Christmas Eve I posted the latest daily challenge in Crystal Paine's 7-Day Challenge, part of Say Goodbye to Survival Mode.

Since it was a holiday week, I decided to make that one day (or for me, one week) challenge last for 2 weeks. So I am still working on it.

To help, Crystal just posted a free printable chore planner to keep the home organized. You can get it here if you pre-order her book.

So, go check it out! The book will be available for purchase on January 21, but pre-order your copy now and you get lots of freebies - including the one above!