Princess Monica also had Niemann Pick Type C. Monica was severely affected and had a wonderful 2 1/2 years of life with her parents and family. Mom Heather celebrated each birthday with a yummy treat. We all looked forward to seeing the pictures of the amazing creation that was Monica's birthday cake. You can read more of Monica's story here, including pictures of the yummy treats.
Dad Simon and Mom Heather
at the NNPDF Conference in Baltimore, MD
As you can see, Bella was not too far from making her grand entrance into this world at the NNPDF conference in August 2013.
Monica became a guardian angel to Bella on September 15, 2013. I know that both girls are much loved and Monica is very much missed. But I also know that Bella will have a wonderful life because Monica is keeping an eye on her.